UK SMA Patient Registry
This registry is for patients in the United Kingdom and Ireland with Spinal Muscular Atrophy (SMA).
- Learn more about the patient registry, the advantages of registering for you as a patient and the registration process.
- Contact us if you would like to receive the paper registration form to fill in.
Currently, there are 700 patients in this registry.
Co-sponsored by the patient organisation Spinal Muscular Atrophy UK.
'Established for over 30 years, we are a charity that supports, campaigns and advocates so that everyone in the SMA community can access the best care, services and treatments and benefit from continued research.'