UK SMA Patient Registry

This registry is for patients in the United Kingdom and Ireland with Spinal Muscular Atrophy (SMA).

Currently, there are 700 patients in this registry.

Co-sponsored by the patient organisation Spinal Muscular Atrophy UK.

Spinal Muscular Atrophy Support UK 

'Established for over 30 years, we are a charity that supports, campaigns and advocates so that everyone in the SMA community can access the best care, services and treatments and benefit from continued research.'