Advantages for patients
If you are a patient with SMA, there are good reasons for you to register here:
- You will be able to take part in international clinical trials more easily.
- You will be regularly updated about research results, as well as about TREAT-NMD activities. This means that you will be informed about new treatments and about what specialists think are the best ways of caring for people with SMA. The standards of care are guidelines on the treatment of patients that have been compiled by international experts.
- You will help researchers gain more knowledge about the prevalence and natural history of SMA within Europe and about the way patients are being cared for.